SANDS – the Stillbirth and Neonatal Death Charity.
Helpline: 020 7436 5881 Email: email@example.com
Provides support via telephone and email, for anyone who has lost a baby before or after birth. They run a network of local support groups where you can meet other bereaved parents, share stories and support each other – for details of your local group please contact SANDS or visit our Local Resources page. Alternatively, your midwife or GP will be able to help you find your local group. SANDS also runs a befriender program, where they will put you in touch with a local person who has had a similar experience to you, and you can arrange to meet them whenever and wherever you wish. If the idea of meeting a group of new people is daunting at the moment, you might want to consider the befriender program. You can also email or talk on the phone with one of SANDS advisors, who can offer one-to-one support. The SANDS telephone helpline is open 9.30am – 5.30pm, Monday – Friday and Tuesday and Thursday 6 – 10pm.
The Miscarriage Association
Helpline: 01924 200799 Email: firstname.lastname@example.org
Provides support and information for those affected by the loss of a baby in pregnancy. Offers a helpline (9am to 4pm), a network of support groups and telephone contacts across the UK, and a range of leaflets, factsheets and audiotapes. Also works to raise awareness and sensitivity amongst health care professionals through conferences, workshops and supporting clinical research projects. The Miscarriage Association helpline runs from 9am – 4pm, Monday to Friday.
The Child Bereavement Charity
Helpline: 01494 568900 Email: email@example.com
Supports families when a child dies, or when a child has suffered a bereavement themselves. They also support professionals to care for families who have lost a child. They offer confidential support and information over the phone. The helpline is run from Monday to Friday, 9am – 5pm
Helpline: 0800 0147 800 Email: firstname.lastname@example.org
Funds research into stillbirth, premature birth and miscarriage, and provides information for parents-to-be. Enquiries are answered by Tommy’s trained midwives, who can provide counselling & support, including how you can plan for your next pregnancy.
CRUSE Bereavement Care
National Helpline: 0844 477 9400 Email: email@example.com
Offers telephone and email support, as well as one-to-one support, either in neutral locations such as your local hospital, or you can arrange for someone to visit you at home. If you are not ready to talk to other people who have lost a child, but would like to talk to someone, CRUSE may be able to help you. The national telephone helpline is open for calls from 9.30am to 5pm on Monday-Friday.
Helpline: 0845 123 2304 Email: firstname.lastname@example.org
The Compassionate Friends (TCF) is an organisation of bereaved parents and their families offering understanding, support and encouragement to others after the death of a child or children. The Helpline is always answered by a bereaved parent who is there to listen when you need someone to talk to, and can put you in touch with your nearest Local Contact. The helpline also offers support and information to those supporting bereaved families. It is open every day of the year – 10am to 4.00pm / 6.30pm – 10.30pm (GMT).
The Child Death Helpline
Helpline: 0800 282986
The Child Death Helpline is a national freephone service staffed by bereaved parents. It is a joint venture between the Royal Liverpool Children’s NHS Trust Alder Hey and Great Ormond Street Hospital for Children NHS Trust. The Helpline is for parents or anybody affected by the death of a child of any age from pre-birth to adult, under any circumstances. The helpline is run every day from 7pm – 10pm, Monday to Friday 10am – 1pm, Wednesday afternoons 1pm – 4pm.
Foundation for the Study of Infant Deaths (FSID)
Helpline: 020 7233 2090 Email: email@example.com
The Foundation for the Study of Infant Deaths (FSID) is one of the UK’s leading baby charities working to prevent infant deaths and promote baby health. FSID carries out its aims by funding research, supporting bereaved families and promoting information on how to reduce the risk of cot death to health professionals and the public.
FSID runs a helpline on 020 7233 2090: 9am to 6pm, Monday to Friday, calls are answered in confidence by trained advisors. 6-11pm, every day of the year, calls are answered in confidence by trained befrienders who have been bereaved by the sudden and unexpected death of their baby.
Ectopic Pregnancy Trust
Helpline: 020 7733 2653 Email: firstname.lastname@example.org
Provides support and information to couples who have suffered an ectopic pregnancy. Offers a helpline and support network. Also supports research into the underlying causes, treatment and prevention of this life-threatening condition and strives to improve the diagnosis and treatment of ectopics within the medical profession.
Scottish Care & Information on Miscarriage (SCIM)
Helpline: 0141 552 5070 Email: email@example.com
Offers a specialised counselling service for: miscarriage, stillbirth, neonatal death, and related issues such as; infertility, depression, stress, relationship difficulties, emotional support, employment issues, loss and bereavement.
ARC (Antenatal Results and Choices)
Helpline: 0845 077 2290 or 0207 713 7486 Email: firstname.lastname@example.org
The only national charity which provides non-directive support and information to expectant and bereaved parents throughout and after the antenatal screening and testing process; when they are told their unborn baby has an anomaly; when they are making difficult decisions about continuing with or ending a pregnancy, and when they are coping with complex and painful issues after making a decision, including bereavement. ARC provides this support through a national helpline, a website, a national volunteer support network, a moderated password-protected forum, and a range of literature for parents and their families.
Still Standing Magazine is an online magazine written by parents who have experienced miscarriage, stillbirth and/or neonatal death. Many parents we have spoken to have said in the early days and weeks following their loss, they were frightened of what the future might hold for them. Reading the stories of other families who have suffered similar losses may provide you with the hope and reassurance that you are looking for. Many of the stories provide helpful ideas to get you through particularly difficult days and suggestions for preserving your precious mementos. The magazine accepts guest posts, and when you are ready you may feel like submitting your own story to share with people who truly understand what you are going through. You can read the magazine on their website, or you can find them on Facebook.
While you were pregnant, you may have signed up to websites such as BabyCentre. Although it may be very difficult to use sites like this after your loss, the forums there can provide invaluable support. BabyCenter has a baby loss support group, and other specific support groups such as pregnancy after a loss, and miscarriage support. If you were previously signed up to BabyCenter and registered your due date or your baby’s birthday, you may still be getting emails that update you on your baby’s progress. In your account settings there is an option to turn off these emails if you want to. If you are not already signed up for an account with BabyCenter, you can sign up for free at their website.
We are looking for any kind of online resource that you have found helpful. It could be a charity, a nonprofit, an information site, a forum or support group – anything at all that has helped you. It doesn’t have to be based in the UK, as online resources can be accessed from anywhere in the world. Please use the form below to make a recommendation.
If you would like to recommend a local resource that people can physically attend, rather than an online resource – please go to our Local Resources page and recommend your resource from there. If you would like to recommend a UK Baby Loss Blog, please visit our Blog List. Thank you.
If you would like to comment on a resource that is already listed here, please share your thoughts in the comments section at the bottom of this page.